关键词：肛门直肠畸形；生活质量；远期随访
【摘要】 目的 调查肛门直肠畸形术后患儿远期生活质量状况。方法 随访65例肛门直肠畸形术后患儿，年龄8～16岁。应用自行设计的问卷和Achenbach’s儿童行为量表调查排便功能障碍对患儿的社会活动和心理行为的影响，并提出远期生活质量初步评分标准，尝试评估患儿的生活质量。结果 65例患儿中14例饮食受限，11例曾缺课，9例与同伴交往受限，12例存在心理行为问题。排便功能差或高位肛门直肠畸形患儿受到影响较严重。根据生活质量初步评分标准，59例生活质量良好。结论 严重排便功能障碍影响肛门直肠畸形术后患儿的社会活动和心理行为，影响患儿的生活质量。排便功能差的患儿生活质量差。应进行长期规律随访、生物反馈疗法和心理咨询等，改善患儿生活质量。
PreliminaryLong-Term Follow-Up Study on Quality of Life After Anorectal Malformation Correction
BAI Yuzuo, WANG Weilin, WANG Huizhen, et al.
Department of Pediatric Surgery, The 2nd Clinical College, China Medical University,Shenyang 110003
【Abstract】 Objective Toevaluate the quality of life in children after operative correction for anorectalmalformation (ARM). Methods Sixty-five children with ARM (age range 8to 16 years) were followed-up. The long-term quality of life was evaluated with apsycho-social questionnaire and Achenbach’s Child Behavior Check List (CBCL). Results Ofthe 65 children, 21.5% had limited choice of food, 16.9% experienced absenteeismfrom school, 13.8% reported restricted social life and 18% had psychological-behavioralproblem. Those with incontinence and high type of ARM were more affected. 90.8% ofchildren scored fair or good on the quality of life scale. Conclusions Incontinenceaffects the social activities and behavior of children with ARM. These children needlong-term follow-up, biofeedback and psychotherapy to improve the quality of life.
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