孤独症儿童的干预困境与父母养育成长体验的质性研究

【摘要】目的挖掘孤独症儿童的干预困境与父母的养育成长体验,旨在为制定家庭支持措施提供依据。方法通过描述性现象学研究,选取2023年1至4月在中山大学附属第三医院儿童发育行为中心就诊的20名孤独症儿童父母进行半结构式访谈,采用Colaizzi7步法分析资料。结果孤独症儿童的干预困境共提炼2个主题:知识与资源匮乏、家庭内部冲突与分歧。父母养育成长体验共提炼3个主题:包容与坚韧的心态、能力的多维提升、家庭成员重构自我与人生价值。结论孤独症儿童父母经历了干预困境,收获了积极的养育成长体验。支持孤独症儿童,帮助父母积极应对挑战至关重要。
【关键词】孤独症;成长困境;干预;父母;质性研究
Aqualitativestudyoftheinterventiondilemmasandparentinggrowthexperiencesforparentsofchildrenwithautism
DAIYushen1,ZHANGLifeng1,FENGYongshen1,LIUShaofei1,JIYan2,CHENMiaoying2
(1.SchoolofNursing,SunYat-senUniversity,Guangzhou510080,China;2.ChildDevelopmentandBehaviorCenter,theThirdAffiliatedHospitalofSunYat-senUniversity,Guangzhou510630,China)
Correspondingauthor:CHENMiaoying,E-mail:chmiaoy@mail.sysu.edu.cn
【Abstract】ObjectiveToexploretheinterventiondilemmaofautisticchildrenandtheirparents’upbringingandgrowthexperience,aimingtoprovideevidenceforfamilysupportmeasures.MethodsThroughadescriptivephenomenologicalstudy,semi-structuredinterviewswereconductedwith20parentsofchildrenwithautismfromJanuarytoApril2023atChildDevelopmentandBehaviorCenteroftheThirdAffiliatedHospitalofSunYat-senUniversity.AnddatawereanalyzedusingColaizzi’s7-stepmethod.ResultsTheinterventiondilemmasofchildrenwithautismweredistilledintotwothemes:lackofknowledgeandresources ......
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