Patient's perspective
http://www.100md.com
《英国医生杂志》
A K Siotia, research fellow in cardiology, Northern General Hospital, Sheffield S5 7AU Anjan.Siotia@sth.nhs.uk
I am happy that doctors all over the world are learning from my case1 and do not mind my name on the case report or my condition being discussed. I do not want anyone to go through what I had to.
I am very independent and look after myself. My mother is very supportive and helps me a lot. I help her with cleaning, vacuuming, washing up, chopping vegetables, and a bit of cooking. I go out on my own to the corner shops to do my shopping. I even have my own purse where I keep all my money.
I did know the implications of having the surgery. I did not have any problems with the surgery because my periods were very bad and I never wanted to have a baby anyway. My mother helped me make the decision. I do not remember much of what happened after the operation. I was too poorly, and I know only what my mother told me. So many people came to visit me but I do not remember anything.
I feel bad that my thyroid was never checked before. If this had been checked I would not have had to go through all those problems. However, I am very pleased with all the attention and care I received in my local hospital. The doctors and nurses were nice to me.
I feel all right now. I come to clinic regularly and my thyroid level is checked every six months. I am more active now than I was before. I used to sleep a lot and feel tired all the time. My skin was very dry and I put on a lot of weight. Now things have improved greatly. In the end I hope that doctors all over the world have learnt something from reading my case.
Competing interests: None declared.
References
Siotia AK, Chaudhuri A, Muzulu SI, Harling D, Muthusamy R. Postoperative hypoxia in a woman with Down's syndrome: case outcome. BMJ 2005;330: 1068.(Jane Webb, for the with the help of her )
I am happy that doctors all over the world are learning from my case1 and do not mind my name on the case report or my condition being discussed. I do not want anyone to go through what I had to.
I am very independent and look after myself. My mother is very supportive and helps me a lot. I help her with cleaning, vacuuming, washing up, chopping vegetables, and a bit of cooking. I go out on my own to the corner shops to do my shopping. I even have my own purse where I keep all my money.
I did know the implications of having the surgery. I did not have any problems with the surgery because my periods were very bad and I never wanted to have a baby anyway. My mother helped me make the decision. I do not remember much of what happened after the operation. I was too poorly, and I know only what my mother told me. So many people came to visit me but I do not remember anything.
I feel bad that my thyroid was never checked before. If this had been checked I would not have had to go through all those problems. However, I am very pleased with all the attention and care I received in my local hospital. The doctors and nurses were nice to me.
I feel all right now. I come to clinic regularly and my thyroid level is checked every six months. I am more active now than I was before. I used to sleep a lot and feel tired all the time. My skin was very dry and I put on a lot of weight. Now things have improved greatly. In the end I hope that doctors all over the world have learnt something from reading my case.
Competing interests: None declared.
References
Siotia AK, Chaudhuri A, Muzulu SI, Harling D, Muthusamy R. Postoperative hypoxia in a woman with Down's syndrome: case outcome. BMJ 2005;330: 1068.(Jane Webb, for the with the help of her )